FARA Australasia – Supporting the search for a cure for FA
Friedreich Ataxia Research Association (Australasia) (FARA(A)) is a not-for-profit organisation whose sole purpose is to fund research on Friedreich Ataxia (FA), a condition for which, currently, there’s neither treatment nor cure.
The guest speaker for our Dinner Meeting is Mike Dwyer from FARA and one of his two daughters to speak about a very rare disease suffered by both his daughters.
The first symptoms of FA are usually difficulty with balance, poor coordination in either or both of the arms and legs, and thick or slurred speech. It affects males and females equally.
The disease usually presents in children between 5 and 10 but could be up to early twenties.
FA can also appear later in life as Late-Onset Friedreich Ataxia and symptoms and progression of the disease are generally slower.
Over time, conditions are likely to become worse. Age of onset, severity of symptoms and speed of progression differ with each patient and are usually associated with the degree of abnormality in the FXN gene.
Visit the website – http://www.fara.org.au/